New from The Patients’ Academy

Health Equity and Representation in Research for Patient Advocates

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An introductory course for people who work in patient advocacy organizations and patient advocates who want to learn how to help make research more diverse, inclusive and equitable.

5 modules; approx. 60 minutes total.

Module 1 - Welcome to the Course
Module 2 - Foundations and Definitions
Module 3 - Impact of Representation in Research
Module 4 - Barriers to Representation in Research
Module 5 - What Can Advocates Do?

 

NASCIC SCI Research Advocacy Course

A free online course developed by the Patients’ Academy for Research Advocacy with and for stakeholders in spinal cord injury (SCI) research, on behalf of the North American Spinal Cord Injury Consortium (NASCIC). Learn how decision-making drives research from the lab to patients, how to design trials that meaningfully engage the SCI community, and how individuals with lived experience and researchers can partner effectively. Free registration with NASCIC required.

12 modules; approx. 6 hours

 

Need a course?

The Patients’ Academy for Research Advocacy is expanding the ranks of patients and care partners who are willing and able to engage in research as full partners with a unique ability to advance science and medicine.

We partner with patient advocacy organizations to co-develop online courses and in-person workshops with and for patient advocates and care partners. Participants in our courses and workshops learn how their expertise can make research more relevant to patients, and more efficient and successful for all stakeholders.

  • Designed with and for patients and care partners

  • In-depth programming guided by our partners in drug development, regulation, and patient advocacy

  • Practical, with an emphasis on understanding key decision points during drug development

  • Geared toward advocacy for research, products and outcomes that meet patients’ needs

  • Always free to participants

We also develop custom programs for biopharma companies and research organizations. Contact us to learn more.